Oskaloosa.com

Local News

October 12, 2011

Community mourns for Nicholas Moore

OSKALOOSA — Nicholas Moore, 10, of Oskaloosa, passed away on Saturday after a lifelong battle with a rare skin condition.

He was surrounded by family as he passed away at the University of Minnesota Amplatz Children’s Hospital in Minneapolis.

In early September, community members gathered at the Oskaloosa Square to pray for Nicholas, who was afflicted with Recessive Dystrophic Epidermolysis Bullosa. The gathering included prayers, scripture readings and was concluded with the song “He’s My Son,” followed by sharing and fellowship.

Evidence that Nicholas was a beloved member of the Oskaloosa community could be seen on the wrists of many residents.

Dawn Anderson, an Oskaloosa Elementary School kindergarten teacher, had been distributing rubber bracelets in support of Nicholas as he was receiving treatments at the University of Minnesota Amplatz Children’s Hospital earlier this year. Anderson is a family friend of the Moores.

Although the bracelets cost $1 to those wishing to show their support with them, Anderson stressed that they were not sold as a fund-raiser for Moore. She explained that any money received for the bracelets helped cover the cost to have them made. Any money the bracelets made beyond that was donated to a child with medical needs that needs aid in paying for any treatments.

The son of Matthew and Elizabeth Moore, Nicholas was born with RDEB, which caused an overall weakness in his skin. This resulted in a blistering and scarring of the skin on much of Moore’s body.

Back in February, Anderson said Nicholas had shown incredible strength despite his condition.

While being treated at the University of Minnesota Amplatz Children’s Hospital, Nicholas received bone marrow stem cell transplant treatments thanks to his older brother, Jack, who is a genetic match with Nicholas.

Funeral Services will be held at 2 p.m., Friday afternoon, Oct. 14, at the Central United Methodist Church with Pastors Bob Morris and Tom Boomershine officiating. Burial will be in Forest Cemetery. Visitation will begin at 10 a.m., Thursday at Garland-Van Arkel-Langkamp Funeral Chapel; the family will be present from 4-9 p.m. to greet visitors. Memorials may be made to the Minnesota Medical Foundation/Epidermolysis Bullosa Fund. Nicholas’ full obituary can be found in the Tuesday, Oct. 11, edition of the Herald.

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Herald City Editor Andy Goodell can be reached at news2@oskyherald.com

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